Inside Out Girl

The shattered mum of an inside out tot born with her heart outside her chest has told how the youngster will run out of life saving drugs within weeks because health officials have refused to fund them.

Desperate Darya Mihitaryants says she needs to raise 20,000 GBP to buy the five different types of medication that keeps toddler Beersheba's heart beating.

The two-year-old girl was born suffering from Ectopia Cordis, a one in 8 million condition where vital organs develop outside the body.

But now devastated Darya, from Novorossiysk, Russia, has been told she will need to pay for the next stage of drugs that keep her daughter alive.

"It is so hard. We aren't rich people so where can we find that sort of money?" she said.

"The doctors talk of an operation to put her heart back in her chest but that would cost millions. Right now. She won't see her next birthday if we can't raise some money," she added.

Journalism Without Borders is collecting donations for Beersheba's treatment.